It’s been 5 weeks since I wrote about my diagnosis. So many things have happened.
Here is a kind of progress report.
A few weeks ago, my friend who I was in high school with, Rita, told me a number of ladies I went to school with were very interested in my predicament. They had formed a group 2 years ago and they met a few times in the year.
They added me to their WhatsApp group.
They asked me, “What can we do for you?”
I asked them to send some money to my niece in Nakuru. It was done in 5 minutes. Nicole called me hyperventilating.
After getting the contacts for Aunt Nyambura and Baba Mwaniki, I sent them the information, told them what the situation was and asked them to organise visits.
They have already called them and set up visits.
Both Aunt Nyambura and Baba Mwaniki are very fragile and wary of people.
They only warmed up to them because they knew I sent them and are now looking forward to meeting my friends.
These people need some emotional support first.
People to visit without offering dumb solutions. People who would not judge.
This special group of women is on the ball. They are not jokers. They are all accomplished women. I asked God where they came from.
Thank you, thank you, thank you.
The next thing I want to do is send an ataxia kit to Kenya.
The kit includes all the supplements I take that ataxia patients need. Co enzyme q10, omega 3. A few health foods I mix in smoothies like maca powder.
Money to buy a blender and juicer.
I need 3 balance wear vests for Mercy, Richard and Shakim. Their walking has been compromised and these vests will greatly improve their quality of life.
The vests need to be customized for each person and I have already emailed the CEO and creator of the vest Cindy, who may be interested in travelling to Kenya to fit the vests and do a safari at the same time.
My idea is to bring back these patients from the brink of death. To give them a little hope. To give them a reason to fight.
My plan is to send 6 months to a year’s supply to each sick person.
The ataxia kit will be funded by opening a gofundme page for people to contribute from abroad then I will use someone’s number in Kenya I trust to collect donations through MPESA in Kenya.
The ataxia kit details will be on my blog.
I have so many future plans for my relatives.
I will get them the help they need. That’s a promise.
I have a weird relationship with death. I blamed myself for years after my Dad died. I felt I let him down because I was not present when he died.
When Elizabeth died, I handled it OK because I had done my best to help her. Since I can’t escape this ataxia, I want to improve the quality of lives of my relatives and end the ataxia in my family. I have to do this, this time. I have more resources available now.
There also needs to be to an education campaign to stop this stigma in Kenya surrounding every freaking disease known to man.
I will unveil the plans as I go on. Currently Rita and I are also trying to find out what needs to happen to register a non profit in the USA with a 501c3 tax exemption status in Washington DC.
I love this new project. Do you know I am just giving instructions from the comfort of my room?
With Snow White.
I’m using my blog, WhatsApp and Facebook messenger.
I am alive again.
I have never known why I blog, I have never even monetized my blog. But if it was to find help for my family, it was all worth it.
I could not do anything without help from my friends on the ground in Kenya.
My next article will give the details of the ataxia kit.